Reading poems written by young people from CHIVA; The Childrens HIV Charity at the press launch of the CHERUB garden at the Chelsea flower show. Designed to bring attention to the experiences faced by young people growing up with HIV and the research that is being done in the UK by CHERUB (a collaboration of researchers) to find a cure for HIV. Due to stigma, the young people themselves felt unable to perform their own poems, so we were honoured to read for them.
This week we are taking part in a week long workshop with young people, exploring their experiences of growing up with HIV through spoken word, music, poetry and drama. The longer term aim is to create a live storytelling performance and film based on the true stories collected from young people living in the UK who have grown up with HIV. This is a project for CHIVA; The Childrens HIV Association in collaboration with Turtle Keys Arts.
We are continuing to take the live performance of “Psoriasis; The Skin I’m In” to conferences and events around the UK and Europe. We have had such a warm reception from audiences of health care professionals and people with psoriasis, and have had dermatologists reporting a change in the way they are practising as a result of what they have learnt from this piece. We were really pleased to perform at the RCGP conference in Liverpool in October where we received a standing ovation.
A unique film/storytelling project in collaboration with Dr Sandy McBride (consultant dermatologist at the Royal Free London Hospital). We launched the film on you tube to coincide with National Psoriasis Week in the UK. It is designed to educate and bring awareness.
I interviewed 20 people with Psoriasis and from the transcripts Danny Scheinmann and I created a spoken word piece which we perform with music from Neyire Ashworth and Simon Edwards. The film is directed by Simon Baker. The stories are true, and many of the words are verbatim.
So excited to be filming our story about Psoriasis “The Skin I’m In”. Rising to the challenge of translating the live storytelling piece onto film, with a fantastic creative team. Its a real pleasure to work with director Simon Baker, producer Fenella Mcguire, and musicians Neyire Ashworth and Simon Edwards and of course the wonderful Danny Scheinmann.
I am delighted that we have secured a grant for an exciting collaboration between myself and Danny Scheinmann (storytellers), Buddy Films and consultant dermatologist Sandy McBride from the Royal Free Hospital, London. The collaboration will draw from true life stories collected from people with psoriasis to develop a live storytelling event, and later a short film which seeks to engage health professionals, people with psoriasis and the general public in the emotional story of what it is to live with psoriasis.
The performance and film aim to change the behaviour of health care professionals towards people with psoriasis, encouraging early and effective treatment and also changing the behaviour of the public towards people with psoriasis raising understanding and reducing stigma and rejection.